Form 1 SIS Emerging Adults Focus Group Survey

OMB Control Number: 0925-0648

Expiration Date: 03/31/2018

Public reporting burden for this collection of information is estimated to average 90 minutes per response, including the time for reviewing instructions, searching existing data sources, gathering and maintaining the data needed, and completing and reviewing the collection of information. An agency may not conduct or sponsor, and a person is not required to respond to, a collection of information unless it displays a current valid OMB control number. Send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden, to NIH, Project Clearance Branch, 6705 Rockledge Drive, MSC 7974, Bethesda, MD 20892-7974, ATTN: PRA (0925-0648). Do not return the completed form to this address.

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Moderator:

Hello. Thank you very much for coming to participate in this focus group. You are here to help National Library of Medicine develop health information resources for young adults, particularly young adults living with chronic illness. The National Library of Medicine is one of the NIH institutes. It is also the world’s largest biomedical library, and an organization that produces electronic information resources on a wide range of topics that are searched by millions of people around the world. Thank you very much for being here to help its mission.

My name is ________, and I am a community health student at the University of Maryland and an intern at the National Library of Medicine. I will be moderating this group. _______, another intern, is here to take notes. She will not be recording your names or any information that may identify you. Also, please, remember that your participation is strictly voluntary and you don’t have to answer any questions you don’t feel comfortable answering. The duration of the focus group is 90 minutes.

Let’s start with introductions (INTRODUCTIONS).

Questions - general

1. Young adulthood is the time of transition in many aspects of life, including healthcare. When you turn 18, you may switch from seeing a pediatrician to seeing an adult medicine doctor. You may also start seeing a different doctor, whether pediatric or adult, because of moving to a different area for work or college. Also, you become a legal adult, so your parents are no longer your official health decision-makers. While every situation is unique, some kind of changes are common at this stage.

If you recently went through a transition from pediatric care to other care, what was it like? What were the biggest challenges and surprises?

• Probes: What are or were your hesitancies or challenges about finding a new practitioner?

• If you had to locate a local specialist, what search methods did you use to identify them?

2. What health-related challenges have you faced in adjusting to college life?

3. What health information resources have you been using in that adjustment? At your school? Elsewhere?

4. What health information resources do you know about on campus? Do you use them? Why or why not?

5. What type of health information resources would you benefit from that you don’t currently have, or don’t know how to find?

6. What type of campus health information resources would you benefit from that your school does not currently offer?

7. What ways of learning about health information / health information resources do you prefer? Why? (Examples: apps, websites, booklets, intro classes, school counseling, school housing, campus health center, etc.).

Questions - insurance

8. How confident are you in your ability to deal with health insurance (e.g., choosing plans, negotiating, getting covered and reimbursed, etc.)? Feel free to describe your experience dealing with health insurance when answering this question.

9. Where does your understanding of health insurance come from?

10. What would like to know about health insurance and why?