The National Institutes of Health (NIH) created the Genetic Testing Registry (GTR), a public database that health care providers, researchers, and others can search for information submitted voluntarily by genetic test providers. The GTR aims to enhance access to information about the availability and scientific basis of genetic tests, including newer types of tests such as pharmacogenomic tests. NCBI is considered a suitable developer of the GTR because of its experience in building databases of genetic and medical information and its ability to integrate the information with other data, greatly enhancing the GTR's utility for medical professionals and researchers. The GTR is also integrated with other relevant NIH databases to assist these user groups. NIH is, therefore, a natural home for the GTR because of its role in advancing public health through science and its strong expertise in developing databases.
The latest form for Genetic Testing Registry (OD) expires 2021-08-31 and can be found here.
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Form and Instruction |
Form and Instruction |
Form and Instruction |
Form and Instruction |
Supplementary Document |
Supporting Statement A |
Approved without change |
Extension without change of a currently approved collection | 2021-11-29 | |
Approved with change |
Extension without change of a currently approved collection | 2018-07-10 | |
Approved with change |
Reinstatement without change of a previously approved collection | 2015-03-24 | |
Approved without change |
New collection (Request for a new OMB Control Number) | 2011-11-28 |
Federal Enterprise Architecture: Health - Health Care Services
Form 1 | Bulk Submission Minimal Fields | Fillable Fileable | Form and instruction |
Review document collections for all forms, instructions, and supporting documents - including paper/printable forms.