Use
of Narrative Data to Explore Disparities in Patient Experience
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Informed
Consent
You
are invited to be part of a study being conducted by RAND, a
non-profit research organization based in California. This study is
funded by the Agency for Healthcare Research and Quality (AHRQ), an
agency within the federal Department of Health and Human Services.
The purpose of this study is to learn about patients’
experiences with healthcare providers.
Your participation in this study will involve answering some
questions about your recent visits to your health care provider.
Completing this survey will take about 17 minutes.
Your
participation in this study is completely voluntary. You may withdraw
your consent, discontinue participation, and/or refuse to answer any
questions at any time without penalty.
Your
identity will be kept confidential in all data and reports resulting
from the study. In describing your care, you will be asked to avoid
including any personal information (e.g., names, locations, or
reference to a specific health condition) that could be used to
identify you or your health care provider. Any identifying
information that is included in your response will be removed prior
to analysis and your responses will not be shared beyond the study
team.
There
is no identifiable risk to you from participating in this study.
Participation in this survey will not affect the care that you
receive. The main benefit to participating in this study is that you
will contribute to general understanding about how people make health
care decisions.
All
of the conditions and terms described in the " Terms and
Conditions for participation in KnowledgePanel®" document
that you received when you got your recruitment packet are in effect
for this study. In addition, the confidentiality of your responses
are protected by Sections 944(c) and 308(d) of the Public Health
Service Act [42 U.S.C. 299c-3(c) and 42 U.S.C. 242m(d)].
Information that could identify you will not be disclosed unless you
have consented to that disclosure. If you have questions about your
rights as a research participant or need to report a research-related
injury or concern, you can contact RAND's Human Subjects Protection
Committee toll-free at (866) 697-5620 or by emailing
hspcinfo@rand.org. If possible, when you contact the
Committee, please reference Study #2022-N0410.
Would
you like to participate in this study? If yes, the survey will
follow.