Form 1 dbGap Submission survey

dbGaP Submission Survey - 2022
Start of Block: Default Question Block
OMB Statement OMB Control Number: 0925-0648
Expiration Date: 06/30/2024
Public reporting burden for this collection of information is estimated to average 7 minutes per response,
including the time for reviewing instructions, searching existing data sources, gathering and maintaining the
data needed, and completing and reviewing the collection of information. An agency may not conduct or
sponsor, and a person is not required to respond to, a collection of information unless it displays a current valid
OMB control number. Send comments regarding this burden estimate or any other aspect of this collection of
information, including suggestions for reducing this burden, to NIH, Project Clearance Branch, 6705 Rockledge
Drive, MSC 7974, Bethesda, MD 20892-7974, ATTN: PRA (0925-0648). Do not return the completed form to
this address.
* Indicates a required question

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Q1 Please select one professional category that best describes you. *

o Life Sciences Researcher
o Geneticist
o Genetic Counselor
o Laboratory Staff
o Physician
o Other Healthcare Professional
o Bioinformatics Professional
o Computer Scientist / Software Developer
o Educator
o Student
o Librarian / Information Specialist
o Patient and Family
o Other (please specify below) ________________________________________________
Q2 How likely are you to recommend this resource to a friend or colleague? *

o0
o1
o2
o3
o4
o5
o6
o7
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o8
o9
o 10
Q3 Were you able to complete your dbGaP-related work to your satisfaction? *

o No
o Unsure
o Yes
Display This Question:
If Q3 = No

Q4a If No to the previous question, was it because: (choose all that apply)

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Submission requirements were not clear
SRA data submission, validation, and data processing was not clear
Molecular data submission, validation, and data processing was not clear
Instructions on how to use Submission Portal were not clear
An error was reported that was not clear

Additional comments / Other (please specify below)
________________________________________________

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Display This Question:
If Q3 = Unsure
Or Q3 = Yes

Q4b We recently released the features listed below. Please rate each based on your level of satisfaction.
Dissatisfied

Somewhat
Disatisified

Somewhat
Satisified

Satisfied

Don't
Know

Not Applicable

Automated
validation from the
Submission Portal
for faster feedback
on errors

o

o

o

o

o

o

GaPTools, a
stand-alone tool
for pre-submission
validation

o

o

o

o

o

o

New web form for
study config data
entry

o

o

o

o

o

o

Updated web form
for study data
outline with the
ability to compare
with what was
provided at
registration

o

o

o

o

o

o

Ability to upload
sequence
metadata file via
the Submission
Portal

o

o

o

o

o

o

Faster release of
studies after all
data has been
submitted

o

o

o

o

o

o

Q5 Is this your first time submitting a study to dbGaP? *

o Yes
o No
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Display This Question:
If Q5 = No

Q6a Please drag and drop the tasks below in order from easiest (1) to hardest (7).
______ Registering your study
______ Preparing data / formatting data for a submission
______ Finding the status of your submission
______ Interpreting error / failure reports sent after one or more files are processed by the system
______ Getting timely answers to your questions
______ Interpreting messages from curators
______ Getting your entire submission released as quickly as possible

Display This Question:
If Q5 = Yes

Q6b Please drag and drop the tasks below in order from easiest (1) to hardest (4).
______ Registering your study
______ Preparing data / formatting data for a submission
______ Finding the status of your submission
______ Interpreting error / failure reports sent after one or more files are processed by the system

Q7 What type of data do you personally submit (choose all that apply)? *

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Study Metadata (Study Config web form)
Subject and Sample IDs (Subject Consent and Subject Sample Mapping files)
Phenotype data (Demographic, Clinical or Exposure on person or Sample attributes)
Molecular data (Genotype calls, Expression data or counts)
Sequence data
Analysis data
Other (please specify below) ________________________________________________

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Q8 We are considering several new features to help with submissions. Please drag / drop the items listed
below to indicate your top priorities from the most useful (1) to the least useful (8).
______ A data model explaining how your data is parsed and stored in dbGaP
______ A guide that provides a high-level overview of registration and submission steps
______ A process flow diagram explaining your and other parties’ roles and responsibilities for various
registration and submission steps
______ Sample study submission file templates with realistic data for different types of studies
______ Tailored submission guide that can be customized to your needs
______ Videos that explain registration and submission steps
______ Planned and periodic calls between all submitters for your study and dbGaP experts
______ Other (please specify)

Q9 Please share any other suggestions you have for improving dbGaP submissions.
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