Form 1 2021 ClinVar Survey

ClinVar Submission Survey - 2021 (NDB294)
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Q1
OMB Control Number: 0925-0648 Expiration Date: 06/30/2024
Public reporting burden for this collection of information is estimated to average 4 minutes per
response, including the time for reviewing instructions, searching existing data sources,
gathering and maintaining the data needed, and completing and reviewing the collection of
information. An agency may not conduct or sponsor, and a person is not required to respond to,
a collection of information unless it displays a current valid OMB control number.
Send comments regarding this burden estimate or any other aspect of this collection of
information, including suggestions for reducing this burden, to NIH, Project clearance Branch,
6705 Rockledge Drive, MSC 7974, Bethesda, MD 20892-7974, ATTN: PRA (0925-0648). Do
not return the completed form to this address.
* Indicates Required Question

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Q2 Please select one professional category that describes you best *

o Life Sciences Researcher
o Geneticist
o Genetic Counselor
o Laboratory Staff
o Physician
o Other Healthcare Professional
o Bioinformatics Professional
o Computer Scientist / Software Developer
o Educator
o Student
o Librarian / Information Specialist
o Patient and Family
o Other (Please specify below)
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Q3 Please select one type that describes your organization best *

o College or University
o Commercial or Industry
o Hospital / Clinical / Medical Practice
o Non-Profit Organization
o Government
o Other (Please specify below)
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Q4 How likely are you to recommend this resource to a friend or colleague? *

o0
o1
o2
o3
o4
o5
o6
o7
o8
o9
o 10
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Q5 Were you able to complete your work to your satisfaction today? *

o Yes
o No
o Unsure
Q6 Please order these tasks below from what you consider to be the easiest (1) to what you
consider to be the hardest (7) *
______ Registering your organization
______ Learning about / starting a new submission
______ Updating data for a submission
______ Finding the status of your submission
______ Interpreting automated feedback (i.e., validation errors) when the submission was
uploaded
______ Interpreting submission reports and failure reports sent after the submission is
processed
______ Getting answers to your questions

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Q7 Would you like a cumulative report of all the records your organization has submitted to
ClinVar? Select all that apply. *

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Yes – as-needed by using a download button in the Submission Portal
Yes – sent automatically as a periodic report
Yes – all historical records
Yes – only latest records
No

Other (Please specify below)
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Q8 Would your organization benefit from accessing ClinVar bulk data access in the cloud?

o Yes, for accessing bulk data in the cloud and downloading for use on my local machines
o Yes, for accessing bulk data in the cloud and for using that data in the cloud
o No, the FTP bulk download that is provided today is sufficient
o I don’t download in bulk
o Not sure
o Other (Please specify below)
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Q9 Do you have any other suggestions for improving ClinVar submissions? For example:
• Are there other types of data that we do not ask you to submit today, that you consider
to be valuable to our users?
• Are there other databases that you submit to and what you like about them?
• Other suggestions?
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