Form 1 2021 Medline Plus Genetics Survey

MedlinePlus Genetics Survey
OMB Burden Statement:
OMB Control Number: 0925-0648
Expiration Date: June 30, 2024
Public reporting burden for this collection of information is estimated to average 3 minutes per
response, including the time for reviewing instructions, searching existing data sources,
gathering and maintaining the data needed, and completing and reviewing the collection of
information. An agency may not conduct or sponsor, and a person is not required to respond to,
a collection of information unless it displays a currently valid OMB control number. Send
comments regarding this burden estimate or any other aspect of this collection of information,
including suggestions for reducing this burden, to: NIH, Project Clearance Branch, 6705
Rockledge Drive, MSC 7974, Bethesda, MD 20892-7974, ATTN: PRA (0925-0648). Do not return
the completed form to this address.
Start of Block: User Characteristics
Q1
Thank you for your willingness to provide feedback about MedlinePlus Genetics. This survey
should take no longer than three (3) minutes to complete. Your responses will be secure to the
extent permitted by law.
First, we would like to ask you a few questions about yourself and your interest in the Web site.

Page 1 of 7

Q2 How would you describe yourself? (Please choose the best option.)

o Patient, family, or friend of patient (1)
o Physician (2)
o Genetic counselor (3)
o Other healthcare professional (4)
o Student (5)
o Educator/trainer (6)
o Researcher (7)
o Librarian or information professional (8)
o General public (9)
o Other (please specify) (10) ________________________________________________
Q3 Why are you visiting MedlinePlus Genetics? (Please choose the best answer).

o For information about a gene or health condition (1)
o For general knowledge or interest (2)
o For an assignment (3)
o To interpret genetic testing results (4)
o Other (please specify) (5) ________________________________________________

Page 2 of 7

Q4 How will you use this information? (Please choose the best answer.)

o For my own knowledge (1)
o To share with a family member, friend, patient, or student (2)
o To share with my doctor (3)
o To share with other health professionals or researchers (4)
o Other (please specify) (5) ________________________________________________
Q5 What is the highest level of education that you have completed?

o Less than high school (1)
o High school graduate or GED (2)
o Some college (3)
o 2 year degree (4)
o 4 year degree (5)
o Master's degree (6)
o Professional certificate or other degree (7)
o Doctorate (8)
End of Block: User Characteristics
Start of Block: Experience with MedlinePlus Genetics
Q6 Next, we would like to ask you a few questions about your visit to MedlinePlus Genetics.

Page 3 of 7

Q7 How understandable did you find the content in MedlinePlus Genetics?

o Not at all understandable (1)
o Not very understandable (2)
o Somewhat understandable (3)
o Understandable (4)
o Very understandable (5)
Q8 What features or types of information would you like to see more of on MedlinePlus
Genetics? (Please choose your top three.)
Common disorders (1)
Rare disorders (2)
Links to resources about specific genetic variants (3)
Background information about DNA and genetics (4)
Description of the location of a gene on a chromosome (for example, 17q12) (5)
Diagram indicating the location of a gene on a chromosome (6)
Links to relevant advocacy organizations on condition pages (7)
Other (specify) (9) ________________________________________________

Display This Question:
If If What features or types of information would you like to see more of on MedlinePlus Genetics?
(Ple... q://QID6/SelectedChoicesCount Is Equal to 3

Page 4 of 7

Q9 You mentioned you are interested in: (Each of the three responses chosen in Q8 will be
listed in order, separated by commas). Could you please specify what interests you in those
areas?
________________________________________________________________

Q10 Do you like having the ability to open and close sections (for example, Causes and
References) on the condition, gene, and chromosome pages, or would you rather have all
sections open at once?

o I like to have the ability to open and close the subsections (1)
o I would rather have the subsections all open (2)
o No preference (3)
Q11 How often do you visit MedlinePlus Genetics?

o This is my first visit (1)
o Every six months or less (2)
o Once a month (3)
o Once a week (4)
o Daily (5)

Page 5 of 7

Q12 On a scale from 1 (very unaware) to 5 (very aware), how aware are you that MedlinePlus
Genetics is the new home of content from the Genetics Home Reference website?

o Very unaware (1)
o Somewhat unaware (2)
o Neither unaware nor aware (3)
o Somewhat aware (4)
o Very aware (5)
Q13 Did you come to MedlinePlus Genetics because you were looking for Genetics Home
Reference content?

o No (1)
o Yes (2)
Q14 MedlinePlus Genetics replaced Genetics Home Reference in September 2020. Before
the introduction of MedlinePlus Genetics, which websites had you visited?

o MedlinePlus only (1)
o Genetics Home Reference only (2)
o Both MedlinePlus and Genetics Home Reference (3)
o Neither MedlinePlus nor Genetics Home Reference (4)

Page 6 of 7

Q15 How do you feel about the name MedlinePlus Genetics for this area of the MedlinePlus
website?

o I like it! (1)
o It's fine, but I don't love it (2)
o I don't have a preference (3)
o I hate it! (4)
Q16 Do you have any additional thoughts about the MedlinePlus Genetics name?
________________________________________________________________
________________________________________________________________
________________________________________________________________
________________________________________________________________
________________________________________________________________

Q17 Do you have any other comments about how we can improve the MedlinePlus Genetics
Web site?
________________________________________________________________
________________________________________________________________
________________________________________________________________
________________________________________________________________
________________________________________________________________
End of Block: Experience with MedlinePlus Genetics

Page 7 of 7