Sub-study Partnering with the Public

Request for Approval under the Generic Clearance for the “Conference, Meeting, Workshop, and Poster Session Registration Generic Clearance (OD)”(OMB#: 0925-0740, Expiration Date: 07/31/2022)

TITLE OF INFORMATION COLLECTION: Partnering with the Public for Biomedical Research Seminar Series

PURPOSE: The purpose of this seminar series is to raise interest and awareness among NIH staff, researchers, and the public of the broad range of citizen science and crowdsourcing approaches available to accomplish biomedical research.  Seminars will highlight the variety of methods used by different organizations who have successfully partnered with various communities to advance research.

We will explore different topics involving data and citizen science, and address key considerations in this field including engaging different communities, data collection, communication and dissemination, and ethics and privacy.  When possible, seminars will feature a scientist-citizen scientist pair. Seminars will focus on projects, programs, and initiatives at the intersection of data science and citizen science.

DESCRIPTION OF RESPONDENTS: The targeted groups for this seminar are the following:

1. Federal employees

2. NIH-funded researchers (non-Federal employees)

3. Other researchers and program officials (non-Federal employees)

TYPE OF COLLECTION: (Check all that apply)

[ ] Abstract [ ] Application

[ X ] Registration Form [ ] Other: ______________________

CERTIFICATION:

I certify the following to be true:

1. The collection is voluntary.

2. The collection is low-burden for respondents and low-cost for the Federal Government.

3. The collection is non-controversial and does not raise issues of concern to other federal agencies.

Name: Ellen Mintz

To assist review, please provide answers to the following question:

Personally Identifiable Information:

1. Is personally identifiable information (PII) collected? [ X ] Yes [ ] No

2. If Yes, is the information that will be collected included in records that are subject to the Privacy Act of 1974? [ X ] Yes [ ] No

Gifts or Payments:

Is an incentive (e.g., money or reimbursement of expenses, token of appreciation) provided to participants? [ ] Yes [ X ] No

Amount: $0

Explanation for incentive: (include number of visits, etc)

ESTIMATED BURDEN HOURS and COSTS

Category of Respondent	No. of Respondents	No. of Responses per Respondent	Time per Response (in hours)	Total Burden Hours
Individuals -November 10, 2020	50	1	5/60	4
Individuals -January, 26, 2021	50	1	5/60	4
Totals		100		8

Category of Respondent	Total Burden Hours	Hourly Wage Rate*	Total Burden Cost
Individuals	8	$46.95	$375.60
Total			$375.60

*Source of the mean Hourly Wage Rate is provided by the Bureau of Labor Statistics, Occupation title “Medical Scientists” 19-1040, https://www.bls.gov/oes/2019/May/oes_nat.htm#00-0000.

FEDERAL COST: The estimated annual cost to the Federal government is $1,726.70.

Staff	Grade/Step	Salary**	% of Effort	Fringe (if applicable)	Total Cost to Gov’t
Federal Oversight
Health Specialist	12/1	$86335	2%		$1,726.70
Contractor Cost					$0
Travel					$0
Other Cost					$0
Total					$1,726.70

**The salary in the table above is cited from https://www.opm.gov/policy-data-oversight/pay-leave/salaries-wages/salary-tables/20Tables/html/DCB.aspx

The selection of your targeted respondents

1. Do you have a customer list or something similar that defines the universe of potential espondents and do you have a sampling plan for selecting from this universe? [ ] Yes [ X ] No

We will write an email introducing the seminar and include a link to the registration. The email will specify that the event is open to the public. The email will get sent out to all NCI staff and all NIH staff. We will also send out the email to specific NIH listservs, including “Challenges,” “Citizen Science,” and “Data Science” interest groups. We will encourage the federal recipients of the email who are program managers to pass the event information along to their grantees or collaborators. We will also send the email to the Federal Citizen Science and Crowdsourcing Community of Practice.

Administration of the Instrument

How will you collect the information? (Check all that apply)

[ X ] Web-based or other forms of Social Media

[ ] Telephone

[ ] In-person

[ ] Mail

[ ] Survey Form

[ ] Chart Abstraction

[ ] Other, Explain

Will interviewers, facilitators, or research coordinators be used? [ ] Yes [ X ] No

Please make sure that all instruments, instructions, and scripts are submitted with the request.

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