46 KidneyPancreas Transplant Recipient Registration_Form.xl

Data System for Organ Procurement and Transplantation Network

KidneyPancreas Transplant Recipient Registration_Form.xlsx

Kidney/Pancreas Transplant Recipient Registration (TRR)

OMB: 0915-0157

Document [xlsx]
Download: xlsx | pdf
TRR - Kidney/Pancreas Adult
Fields to be completed by members
Fields to be completed by members







Form Section Field Label Notes
Form Section Field Label Notes
1- Recipient Information Organ Display Only - Cascades from TCR
1- Recipient Information Organ Display Only - Cascades from TCR
1- Recipient Information Recipient First Name Display Only - Cascades from TCR
1- Recipient Information Recipient First Name Display Only - Cascades from TCR
1- Recipient Information Recipient Middle Initial Not required
1- Recipient Information Recipient Middle Initial Not required
1- Recipient Information Recipient Last Name Display Only - Cascades from TCR
1- Recipient Information Recipient Last Name Display Only - Cascades from TCR
1- Recipient Information SSN Display Only - Cascades from TCR
1- Recipient Information SSN Display Only - Cascades from TCR
1- Recipient Information HIC Display Only - Cascades from TCR
1- Recipient Information HIC Display Only - Cascades from TCR
1- Recipient Information DOB Display Only - Cascades from TCR
1- Recipient Information DOB Display Only - Cascades from TCR
1- Recipient Information Gender Display Only - Cascades from TCR
1- Recipient Information Gender Display Only - Cascades from TCR
1- Recipient Information Tx Date Display Only - Cascades from feedback
1- Recipient Information Tx Date Display Only - Cascades from feedback
1- Recipient Information State of Permanent Residence
1- Recipient Information State of Permanent Residence
1- Recipient Information Permanent Zip
1- Recipient Information Permanent Zip
2- Provider Information Recipient Center Code Display Only - Cascades from TCR
2- Provider Information Recipient Center Code Display Only - Cascades from TCR
2- Provider Information Recipient Center Type Display Only - Cascades from TCR
2- Provider Information Recipient Center Type Display Only - Cascades from TCR
2- Provider Information Surgeon Name
2- Provider Information Surgeon Name
2- Provider Information NPI#
2- Provider Information NPI#
3- Donor Information UNOS Donor ID # Display Only - Cascades from feedback
3- Donor Information UNOS Donor ID # Display Only - Cascades from feedback
3- Donor Information Donor Type Display Only - Cascades from feedback
3- Donor Information Donor Type Display Only - Cascades from feedback
3- Donor Information OPO Display Only - Cascades from feedback
3- Donor Information OPO Display Only - Cascades from feedback
4-Patient Status Kidney Primary Diagnosis
4-Patient Status Kidney Primary Diagnosis
4-Patient Status Kidney Primary Diagnosis//Specify
4-Patient Status Kidney Primary Diagnosis//Specify
4-Patient Status Pancreas Primary Diagnosis
4-Patient Status Pancreas Primary Diagnosis
4-Patient Status Pancreas Primary Diagnosis//Specify
4-Patient Status Pancreas Primary Diagnosis//Specify
4-Patient Status Date: Last Seen, Retransplanted or Death
4-Patient Status Date: Last Seen, Retransplanted or Death
4-Patient Status Patient Status
4-Patient Status Patient Status
4-Patient Status Primary Cause of Death
4-Patient Status Primary Cause of Death
4-Patient Status Cause of Death//Specify
4-Patient Status Cause of Death//Specify
4-Patient Status Contributory Cause of Death Not required
4-Patient Status Contributory Cause of Death Not required
4-Patient Status Contributory Cause of Death//Specify Not required
4-Patient Status Contributory Cause of Death//Specify Not required
4-Patient Status Contributory Cause of Death Not required
4-Patient Status Contributory Cause of Death Not required
4-Patient Status Contributory Cause of Death//Specify Not required
4-Patient Status Contributory Cause of Death//Specify Not required
4-Patient Status Retransplanted organ
4-Patient Status Retransplanted organ
4-Patient Status Date of Admission to Tx Center
4-Patient Status Date of Admission to Tx Center
4-Patient Status Date of Discharge from Tx Center Not required
4-Patient Status Date of Discharge from Tx Center
4-Patient Status Functional Status
4-Patient Status Functional Status
4-Patient Status Working for income
4-Patient Status Cognitive Development
4-Patient Status Primary
4-Patient Status Motor Development
4-Patient Status Kidney Foreign Government//Specify
4-Patient Status Academic Progress
4-Patient Status Primary
4-Patient Status Academic Activity Level
4-Patient Status Pancreas Foreign Government//Specify
4-Patient Status Primary
5- Pretransplant Height
4-Patient Status Kidney Foreign Government//Specify
5- Pretransplant Height in Centimeters//Status Value or status is reported, not both
4-Patient Status Primary
5- Pretransplant Height Percentile//Growth Percentiles//%ile Calculated for display only
4-Patient Status Pancreas Foreign Government//Specify
5- Pretransplant Weight
5- Pretransplant Date of Measurement
5- Pretransplant Weight in Kilograms//Status Value or status is reported, not both
5- Pretransplant Height
5- Pretransplant Weight Percentile//Growth Percentiles//%ile Calculated for display only
5- Pretransplant Height in Centimeters//Status Value or status is reported, not both
5- Pretransplant BMI Display Only - Cascades from Database
5- Pretransplant Height Percentile//Growth Percentiles//%ile Calculated for display only
5- Pretransplant BMI://%ile Calculated for display only
5- Pretransplant Weight
5- Pretransplant Previous Transplant Organ Display Only - Cascades from Database
5- Pretransplant Weight in Kilograms//Status Value or status is reported, not both
5- Pretransplant Previous Transplant Date Display Only - Cascades from Database
5- Pretransplant Weight Percentile//Growth Percentiles//%ile Calculated for display only
5- Pretransplant Previous Transplant Graft Fail Date Display Only - Cascades from Database
5- Pretransplant BMI Display Only - Cascades from Database
5- Pretransplant Pretransplant Dialysis
5- Pretransplant BMI://%ile Calculated for display only
5- Pretransplant If Dialyzed, Date of Most Recent Initiation of Chronic Maintenance Dialysis
5- Pretransplant Previous Transplant Organ Display Only - Cascades from Database
5- Pretransplant Date First Dialyzed//Status Value or status is reported, not both
5- Pretransplant Previous Transplant Date Display Only - Cascades from Database
5- Pretransplant Average Daily Insulin Units
5- Pretransplant Previous Transplant Graft Fail Date Display Only - Cascades from Database
5- Pretransplant Average Daily Insulin Units//Status Value or status is reported, not both
5- Pretransplant Pretransplant Dialysis
5- Pretransplant Serum Creatinine at Time of Tx
5- Pretransplant If Dialyzed, Date of Most Recent Initiation of Chronic Maintenance Dialysis
5- Pretransplant Serum Creatinine at Time of Tx//Status Value or status is reported, not both
5- Pretransplant Date First Dialyzed//Status Value or status is reported, not both
5- Pretransplant HIV Serostatus
5- Pretransplant Average Daily Insulin Units
5- PreTransplant NAT HIV

5- Pretransplant Average Daily Insulin Units//Status Value or status is reported, not both
5- Pretransplant CMV Status

5- Pretransplant Serum Creatinine at Time of Tx
5- Pretransplant HBV Core Antibody
5- Pretransplant Serum Creatinine at Time of Tx//Status Value or status is reported, not both
5- Pretransplant HBV Surface Antibody Total

5- Pretransplant HIV Serostatus
5- Pretransplant HBV Surface Antigen
5- PreTransplant NAT HIV
5- PreTransplant NAT HBV

5- Pretransplant CMV Status
5- Pretransplant HCV Serostatus
5- Pretransplant HBV Core Antibody
5- PreTransplant NAT HCV

5- Pretransplant HBV Surface Antibody Total
5- Pretransplant EBV Serostatus
5- Pretransplant HBV Core Antibody
5- Pretransplant Previous Pregnancies
5- Pretransplant HBV Surface Antigen
5- Pretransplant Malignancies between listing and transplant//Specify
5- PreTransplant NAT HBV
5- Pretransplant Malignancies between listing and transplant
5- Pretransplant HCV Serostatus
5- Pretransplant If yes, specify type
5- PreTransplant NAT HCV
6-Transplant Procedure Multiple Organ Recipient Display Only - Cascades from feedback
5- Pretransplant EBV Serostatus
6-Transplant Procedure Were extra vessels used in the transplant procedure Display Only - Cascades from feedback
5- Pretransplant Malignancies between listing and transplant//Specify
6-Transplant Procedure Procedure Type Display Only - Cascades from feedback
5- Pretransplant Malignancies between listing and transplant
6-Transplant Procedure Graft Placement
5- Pretransplant If yes, specify type
6-Transplant Procedure Operative Technique
5- Pretransplant Fracture in the past year (or since last follow-up)
6-Transplant Procedure Duct Management
5- Pretransplant Spine-compression fracture
6-Transplant Procedure Duct Management//Specify
5- Pretransplant Spine-compression fracture//# of fractures
6-Transplant Procedure Venous Vascular Management
5- Pretransplant Extremity
6-Transplant Procedure Arterial Reconstruction
5- Pretransplant Extremity//# of fractures
6-Transplant Procedure Arterial Reconstruction//Specify
5- Pretransplant Other
6-Transplant Procedure Venous Extension Graft
5- Pretransplant Other//# of fractures
6-Transplant Procedure Total Cold ischemia Time Right KI(OR EN-BLOC): (if pumped, include pump time)
5- Pretransplant AVN (avascular necrosis)
6-Transplant Procedure Total Cold Ischemia Time Right KI//Status Value or status is reported, not both
6-Transplant Procedure Multiple Organ Recipient Display Only - Cascades from feedback
6-Transplant Procedure Total Cold Ischemia Time Left KI (If pumped, include pump time)
6-Transplant Procedure Were extra vessels used in the transplant procedure Display Only - Cascades from feedback
6-Transplant Procedure Total Cold Ischemia Time Left KI//Status Value or status is reported, not both
6-Transplant Procedure Procedure Type Display Only - Cascades from feedback
6-Transplant Procedure Total Pancreas Preservation Time (include Cold, Warm, Anastomotic time)
6-Transplant Procedure Operative Technique
6-Transplant Procedure Total Pancreas Preservation Time (include Cold, Warm, Anastomotic time)//Status Value or status is reported, not both
6-Transplant Procedure Duct Management
6-Transplant Procedure Kidney(s) received on
6-Transplant Procedure Duct Management//Specify
6-Transplant Procedure Received on ice
6-Transplant Procedure Venous Vascular Management
6-Transplant Procedure Received on pump
6-Transplant Procedure Arterial Reconstruction
6-Transplant Procedure Left Kidney Final resistance at transplant
6-Transplant Procedure Arterial Reconstruction//Specify
6-Transplant Procedure Left Kidney Final resistance at tx//Status Value or status is reported, not both
6-Transplant Procedure Venous Extension Graft
6-Transplant Procedure Right Kidney Final resistance at transplant

6-Transplant Procedure Total Cold ischemia Time Right KI(OR EN-BLOC): (if pumped, include pump time)
6-Transplant Procedure Right Kidney Final resistance at tx//Status Value or status is reported, not both
6-Transplant Procedure Total Cold Ischemia Time Right KI//Status Value or status is reported, not both
6-Transplant Procedure Left Kidney Final flow rate at transplant
6-Transplant Procedure Total Cold Ischemia Time Left KI (If pumped, include pump time)
6-Transplant Procedure Left Kidney Final flow rate at tx//Status Value or status is reported, not both
6-Transplant Procedure Total Cold Ischemia Time Left KI//Status Value or status is reported, not both
6-Transplant Procedure Right Kidney Final flow rate at transplant

6-Transplant Procedure Total Pancreas Preservation Time (include Cold, Warm, Anastomotic time)
6-Transplant Procedure Right Kidney Final flow rate at tx//Status Value or status is reported, not both
6-Transplant Procedure Total Pancreas Preservation Time (include Cold, Warm, Anastomotic time)//Status Value or status is reported, not both
7- Post Transplant Graft Status
6-Transplant Procedure Kidney(s) received on
7- PostTransplant Resumed Maintenance Dialysis
6-Transplant Procedure Received on ice
7- PostTransplant Date Maintenance Dialysis Resumed
6-Transplant Procedure Received on pump
7- Post Transplant Date of Graft Failure:

6-Transplant Procedure Left Kidney Final resistance at transplant
7- Post Transplant Primary Cause of Graft Failure:

6-Transplant Procedure Left Kidney Final resistance at tx//Status Value or status is reported, not both
7- Post Transplant Primary Cause of Graft Failure//Other, Specify:

6-Transplant Procedure Right Kidney Final resistance at transplant
7- PostTransplant Did patient have any acute kidney rejection episodes between transplant and discharge
6-Transplant Procedure Right Kidney Final resistance at tx//Status Value or status is reported, not both
7- PostTransplant Most Recent Serum Creatinine Prior to Discharge
6-Transplant Procedure Left Kidney Final flow rate at transplant
7- PostTransplant Most Recent Serum Creatinine Prior to Discharge//Status Value or status is reported, not both
6-Transplant Procedure Left Kidney Final flow rate at tx//Status Value or status is reported, not both
7- PostTransplant Patient Need Dialysis within First Week
6-Transplant Procedure Right Kidney Final flow rate at transplant
7- PostTransplant Pancreas Graft Status
6-Transplant Procedure Right Kidney Final flow rate at tx//Status Value or status is reported, not both
7- Post Transplant Patient using any method of blood sugar control?

7- Post Transplant Graft Status
7- Post Transplant Patient on insulin? New field if pancreas graft status is functioning. Modified label if graft status is failed
7- Post Transplant Resumed Maintenance Dialysis
7- Post Transplant Date insulin resumed New field if pancreas graft status is functioning. Modified label if graft status is failed
7- Post Transplant Date Maintenance Dialysis Resumed
7- Post Transplant Total insulin dosage units

7- Post Transplant Date of Graft Failure:
7- Post Transplant Total insulin dosage units//ST Value or status is reported, not both
7- PostTransplant Primary Cause of Graft Failure:
7- Post Transplant Insulin duration of use

7- PostTransplant Primary Cause of Graft Failure//Other, Specify:
7- Post Transplant Insulin duration of use//ST Value or status is reported, not both
7- PostTransplant Did patient have any acute kidney rejection episodes between transplant and discharge
7- Post Transplant Patient on oral medication to control blood sugar New field if pancreas graft status is functioning. Modified label if graft status is failed
7- PostTransplant Is growth hormone therapy used between listing and transplant
7- Post Transplant Date oral medications resumed New field if pancreas graft status is functioning. Modified label if graft status is failed
7- PostTransplant Most Recent Serum Creatinine Prior to Discharge
7- Post Transplant Patient using diet to control blood sugar New field if pancreas graft status is functioning. Modified label if graft status is failed
7- PostTransplant Most Recent Serum Creatinine Prior to Discharge//Status Value or status is reported, not both
7- PostTransplant Pancreas Date of Graft Failure
7- PostTransplant Patient Need Dialysis within First Week
7- Post Transplant C-Peptide Value

7- PostTransplant Pancreas Graft Status
7- Post Transplant C-Peptide Value://ST= Value or status is reported, not both
7- Post Transplant Patient using any method of blood sugar control?
7- Post Transplant Hba1c (%)

7- Post Transplant Patient on insulin? New field if pancreas graft status is functioning. Modified label if graft status is failed
7- Post Transplant Hba1c (%)//Status Value or status is reported, not both
7- Post Transplant Date insulin resumed New field if pancreas graft status is functioning. Modified label if graft status is failed
7- PostTransplant Pancreas Primary Cause of Graft Failure
7- Post Transplant Total insulin dosage units
7- PostTransplant Pancreas Primary Cause of Graft Failure/Specify
7- Post Transplant Total insulin dosage units//ST Value or status is reported, not both
7- PostTransplant Pancreas Graft/Vascular Thrombosis
7- Post Transplant Insulin duration of use
7- PostTransplant Pancreas Infection
7- Post Transplant Insulin duration of use//ST Value or status is reported, not both
7- PostTransplant Bleeding
7- Post Transplant Patient on oral medication to control blood sugar New field if pancreas graft status is functioning. Modified label if graft status is failed
7- PostTransplant Anastomotic Leak
7- Post Transplant Date oral medications resumed New field if pancreas graft status is functioning. Modified label if graft status is failed
7- PostTransplant Hyperacute Rejection
7- Post Transplant Patient using diet to control blood sugar New field if pancreas graft status is functioning. Modified label if graft status is failed
7- PostTransplant Pancreas Acute Rejection
7- PostTransplant Pancreas Date of Graft Failure
7- PostTransplant Biopsy Proven Isletitis
7- Post Transplant C-Peptide Value
7- PostTransplant Pancreatitis
7- Post Transplant C-Peptide Value://ST= Value or status is reported, not both
7- PostTransplant Other, Specify
7- Post Transplant Hba1c (%)
7- PostTransplant Did patient have any acute pancreas rejection episodes between transplant and discharge
7- Post Transplant Hba1c (%)//Status Value or status is reported, not both
7- PostTransplant Pancreatitis
7- PostTransplant Pancreas Primary Cause of Graft Failure
7- PostTransplant Anastomotic Leak
7- PostTransplant Pancreas Primary Cause of Graft Failure/Specify
7- PostTransplant Abscess or Local Infection
7- PostTransplant Pancreas Graft/Vascular Thrombosis
7- PostTransplant Other Not required
7- PostTransplant Pancreas Infection
7- PostTransplant Weight Post Transplant
7- PostTransplant Bleeding
7- PostTransplant Weight in Kilograms//Status Value or status is reported, not both
7- PostTransplant Anastomotic Leak
9- Immunosupression Other Are any medications given currently for maintenance or anti-rejection
7- PostTransplant Hyperacute Rejection
9- Immunosupression Other immunosuppression medication

7- PostTransplant Pancreas Acute Rejection
9- Immunosupression Other immunosuppression medication indication

7- PostTransplant Biopsy Proven Isletitis
9- Immunosupression Other days of induction

7- PostTransplant Pancreatitis




7- PostTransplant Other, Specify




7- PostTransplant Did patient have any acute pancreas rejection episodes between transplant and discharge
PUBLIC BURDEN STATEMENT:


7- PostTransplant Pancreatitis
The private, non-profit Organ Procurement and Transplantation Network (OPTN) collects this information in order to perform the following OPTN functions: to assess whether applicants meet OPTN Bylaw requirements for membership in the OPTN; and to monitor compliance of member organizations with OPTN Obligations. An agency may not conduct or sponsor, and a person is not required to respond to, a collection of information unless it displays a currently valid OMB control number. The OMB control number for this information collection is 0915-0157 and it is valid until xx/xx/20xx. This information collection is required to obtain or retain a benefit per 42 CFR §121.11(b)(2). All data collected will be subject to Privacy Act protection (Privacy Act System of Records #09-15-0055). Data collected by the private non-profit OPTN also are well protected by a number of the Contractor’s security features. The Contractor’s security system meets or exceeds the requirements as prescribed by OMB Circular A-130, Appendix III, Security of Federal Automated Information Systems, and the Departments Automated Information Systems Security Program Handbook. The public reporting burden for this collection of information is estimated to average 3 hours per response, including the time for reviewing instructions, searching existing data sources, and completing and reviewing the collection of information. Send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden, to HRSA Reports Clearance Officer, 5600 Fishers Lane, Room 14N136B, Rockville, Maryland, 20857 or paperwork@hrsa.gov.


7- PostTransplant Anastomotic Leak

7- PostTransplant Abscess or Local Infection

7- PostTransplant Other Not required

7- PostTransplant Weight Post Transplant

7- PostTransplant Weight in Kilograms//Status Value or status is reported, not both

9- Immunosupression Other Are any medications given currently for maintenance or anti-rejection

9- Immunosupression Other immunosuppression medication

9- Immunosupression Other immunosuppression medication indication

9- Immunosupression Other days of induction













PUBLIC BURDEN STATEMENT:

The private, non-profit Organ Procurement and Transplantation Network (OPTN) collects this information in order to perform the following OPTN functions: to assess whether applicants meet OPTN Bylaw requirements for membership in the OPTN; and to monitor compliance of member organizations with OPTN Obligations. An agency may not conduct or sponsor, and a person is not required to respond to, a collection of information unless it displays a currently valid OMB control number. The OMB control number for this information collection is 0915-0157 and it is valid until xx/xx/20xx. This information collection is required to obtain or retain a benefit per 42 CFR §121.11(b)(2). All data collected will be subject to Privacy Act protection (Privacy Act System of Records #09-15-0055). Data collected by the private non-profit OPTN also are well protected by a number of the Contractor’s security features. The Contractor’s security system meets or exceeds the requirements as prescribed by OMB Circular A-130, Appendix III, Security of Federal Automated Information Systems, and the Departments Automated Information Systems Security Program Handbook. The public reporting burden for this collection of information is estimated to average 3 hours per response, including the time for reviewing instructions, searching existing data sources, and completing and reviewing the collection of information. Send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden, to HRSA Reports Clearance Officer, 5600 Fishers Lane, Room 14N136B, Rockville, Maryland, 20857 or paperwork@hrsa.gov.





















































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