NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Telephone (English Version)
Description of changes from 2012 survey
Plain text indicates original text from the 2012 survey that will be retained for the 2019 survey.
Highlighting indicates new text for the 2019 survey that was not included in the 2012 survey.
Strikethrough
indicates text from the 2012 survey that will not be included in the
2019 survey.
Public Burden Statement: An agency may not conduct or sponsor, and a person is not required to respond to, a collection of information unless it displays a currently valid OMB control number.
The OMB control number for this project is 0915-0290. Public reporting burden for this collection of information is estimated to average 0.29 hours per response, including the time for reviewing instructions, searching existing data sources, and completing and reviewing the collection of information. Send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden, to HRSA Reports Clearance Officer, 5600 Fishers Lane, Room 14N-39, Rockville, Maryland, 20857.
This
interview will be recorded for internal quality assurance.
(Continue)
(Refused)
-(Thank
and Terminate)
ENTITY
ID (New):
**HOUSEHOLD
SAMPLE:
__X__
Single Household
_____
Multi-household
SA
STATE
(2-Digit FIPS code): (Programmer:
Code
from fone file)
SB
SAMPLE:
African-American
Recontact sample (Panel) (n=500)
Hispanic
Recontact sample (G1K) (n=500)
Asian
Recontact sample (G1K) (n=500)
National
sample (RDD) (n=1250)
Native
American Recontact sample (G1K) (n=500)
SC
SAMPLE
TYPE: (Programmer:
Code
from fone file)
Landline
Cell
SD
Age
from G1K (Programmer:
Code
from sample file)
SE
Gender
from G1K (Programmer:
Code
from sample file)
Male
Female
SF
Census
region (Programmer:
code
from sample file)
Northeast
Midwest
South
West
SG
ENTITY
ID (Original for G1K and Panel):
**PANEL
HOUSEHOLD SAMPLE:
_____
Single Household
_____
Multi-household
Skip:
(If
code 4 in SB, Continue; Otherwise, Skip to Note before Intro #2)
INTRO1
Hello,
my name is _______, and I am calling from The
Gallup Poll American
Directions Research Group.
I am calling on behalf of the U.S. Department of Health and Human
Services. We're conducting a national survey about organ donation. Am
I speaking to someone 18 or older? (Skip:
If
"Yes", continue; if "No", ask to speak to someone
who is 18 or older)
Respondent available -(Continue)
No one 18 or older in household – (Thank and Terminate)
Respondent not available/Not a good time -(Set time to call back)
(Soft Refusal)
(Hard Refusal) -(Thank and Terminate)
(Skip this question if cell/landline data present in sample file)
S1B Have I reached you on a cellphone or landline phone?
Landline
Cell
(DK)
(Refused)
(If S1B = Landline)
Skip:
(If
code 1 in SC, Continue; Otherwise, Skip to S1B)
S1
First,
I would like to identify the adult living in your household, 18 or
older, who had the most recent birthday. Who would that be?
Respondent -(Skip to S1B)
Someone else in household -(Ask to speak to that person, then reset to Introduction)
No adults 18 or over in household – (Thank, Terminate, and Tally)
Respondent not available – (Record First name and set time to call back)
(Refusal) – (Thank and Terminate)
Skip:
(If
code 2, 3, or 5 in SB, Continue; Otherwise, Skip to Intro #3)
INTRO2
Hello,
my name is _______, and I am calling from The Gallup Poll. I am
calling on behalf of the U.S. Department of Health and Human
Services. We're conducting a national survey about organ donation. We
previously conducted a survey with a (response
from SD -5) to
(response
from SD + 5) year
old (response
from SE) in
this household) who gave permission for us to call again. May I speak
with that person?
Respondent
-(Skip
to S1B)
Someone
else in household -(Ask
to speak to that person and reset to Intro #2)
No
such person/person moved -(Thank
and Terminate)
Respondent
not available/Not a good time -(Set
time to call back)
Soft
Refusal
Hard
Refusal -(Thank
and Terminate)
INTRO3
Hello,
this is _____, calling for the Gallup Panel. I am calling on behalf
of the U.S. Department of Health and Human Services. We're conducting
a national survey about organ donation. May I speak with (name
from fone file)?
Yes,
respondent available
No
longer at this number
Respondent
wants removed from Panel
Household
wants removed from Panel
Respondent
not available/Not a good time
(Soft
Refusal)
(Hard
Refusal)
Skip: (If
code 3 in INTRO3, Continue; If code 4 or 5 in INTRO3, Skip to P2; If
code 1 in INTRO3, Skip to S1B;If code 7 in INTRO3, Set time to call
back; If code 8 or 9 in INTRO3, Thank, Terminate, and Tally)
P1
Since
(name
from fone file) is
a member of the Gallup Panel, may I have his/her new telephone
number, starting with the area code? (Interviewer:
Back
up to dialer and enter new number, then code as appropriate in
Introduction)
Yes
No
(DK)
(Refused)
Skip:
(If
code 1 in P1, Back up to dialer and enter new number, and code as
appropriate in Introduction; Otherwise, Thank, Terminate, and Tally)
P2
Why
[(If
code 4 in INTRO3, read:) do
you/(If
code 5 in INTRO3, read:) does
your household] no longer want to be on the Panel? (Interviewer:
Open
ended and code)
(Interviewer: Allow
Three Responses)
0001
Other (list) [TO
BE CODED]
0002
(DK)
0003
(Refused)
0004
HOLD
0005
HOLD
0006
Don't have the time/too time-consuming/takes too much time to do the
surveys
0007
Topics/content of surveys/don't like the topics (general)
0008
Only want to do "meaningful" surveys (general)
0009
Expected political polls/current events/ social issues topics only
0010
Not paid anything for surveys
0011
Too many surveys to do/too frequent
0012
Too many phone calls
0013
No longer a member of the (original Panel) household
0014
Moving/household move -no forwarding address/phone
0015
Illness/family hardship
0016
Didn't realize what this was
0017
Calling times/Don't like the times I'm called
#
of Responses: 3
List
Other: Y
Skip:
(All
in P2, Thank, Terminate, Tally, and Keep Case I.D.)
Skip:
(If
code 2 in S1B, Continue; Otherwise, Skip to Read before S2)
(If S1B = Cell)
S1C For your safety, are you currently driving?
Yes
No
(DK)
(Refused)
(Call
back if driving; proceed with survey if not driving)Skip:
(If
code 1 in QNS1C, Set time to call back; If code 2 in QNS1C, Continue;
Otherwise, Thank and Terminate)
This is an important study of people's opinions about organ donation. Your assistance in this study is voluntary, but your opinions are needed to provide an accurate understanding of the public's views. If there is any question you do not wish to answer, just tell me. Your answers are confidential and will be combined with those of others. You, as an individual, will never be identified. The questions will require about 20 minutes of your time.
Q1
|
In the past year, have you heard, read, or seen any information at all about organ donation or transplantation? [Response Choice: Yes, No, Don’t Know, Refused] (INTERVIEWER
NOTE: If necessary, read:)
By
ORGAN |
Q2 |
(If
Q1 = Yes) In the past year, Note: items in parentheses will be read as “such as…” in the phone survey, and appear in parentheses in the web survey. [Response Choice: Yes, No, (DK, Refused, N/A)] How about (read and rotate A-T below)?
|
Q2A |
(If Q2T = Yes) What is that other source? [open-ended response] |
Q2B |
(If Q2Q = Yes) Which social media websites? [open-ended response] |
Q2C |
(If Q2R = Yes) Which search engine websites? [open-ended response] |
Q2D |
(If Q2S = Yes) Which other websites? [open-ended response] |
Q2E |
(If Q2Q or Q2R or Q2S = Yes) When you are online, do you typically use a computer, a hand-held mobile device, such as a smart phone or tablet, or do you use both? [Response option: computer, mobile device, or both (DK, Refused, N/A)] |
Q3 |
Which
sources of information would be most likely to influence how you
think or act about organ donation and |
Q4 |
In
general, do you strongly support, support, oppose, or strongly
oppose the donation of organs for |
Q13 |
Have
you |
Q13A |
(If Q13 = Yes) (rotate Q13A A-C) How did you sign up? [Response choices: Yes, No, (DK, Refused, N/A)] A Your State’s Department of Motor Vehicles, Motor Vehicle Department, or Secretary of State Office B. At a donor registration drive or event C. Through a mobile phone app
D. Through a website E. Some other way |
Q13B |
(If Q13AD = Yes) What other way did you sign up to be an organ donor? [open-ended response] |
Q13C |
(If Q13A = D (website)) Did you sign up using a hand-held mobile device such as a smart phone or tablet? [Response Choice: Yes, No, (DK, Refused, N/A)] |
Q5 |
(If
Q13 NOT
= Yes) |
Q14B |
(If Q5 = definitely yes or probably yes) Would
you be willing to sign up to be an organ donor? [Response Choices: Yes, No, (DK, Refused, N/A)] |
Q14C |
(If
Q14B NOT
= Yes) |
Q14C1 |
(If Q14C = “don’t know” or “no reason”) Would you say it is for one of these reasons? [Response Choices: Yes, No, (DK, Refused, N/A)]
|
Q14D |
(If
Q14B NOT
= No) |
Q14E |
(If Q5 = definitely yes or probably yes) Would you be willing to sign up to be an organ donor through a hand-held mobile device such as a smart phone or tablet? [Response Choices: Yes, No, (DK, Refused, N/A)] |
Q6A |
(If Q5 NOT = definitely yes or probably yes) Is there a particular reason why you do not want your organs donated upon your death? If Yes, what might that reason be? [Open-ended response] |
Q6A1 |
(If Q6A = “don’t know” or “no reason”) Would you say it is for one of these reasons? [Response Choices: Yes, No, (DK, Refused, N/A)]
|
Q6B |
(If
Q5 NOT
= definitely yes or probably yes) Have you discussed with a member
of your family your wish |
Q6BB |
(If Q5 NOT = definitely yes or probably yes) Is there one thing that could change your mind to want to be a donor? (If Yes): What would that be? [Open-ended response] |
Q6BC |
(If
Q13 = Yes) If you had to identify the |
Q6BD |
(If Q6BC= “don’t know” or “no reason”) “Would you say it is for one of these reasons?” [Response Choices: Yes, No, (DK, Refused, N/A)]
|
Q6C |
(If Q13 = Yes) Have you discussed your wish to be an organ donor with a member of your family? [Response Choices: Yes, No, (DK, Refused, N/A)] |
Q7 |
(If Q6C NOT Yes) How willing are you to discuss your wishes about organ donation with your family? Would you say very willing, somewhat willing, not very willing, or not at all willing? |
Q8 |
(If Q6C = not very willing or not at all willing or DK) Is there a particular reason why you are unwilling to discuss donation with your family? |
Q8A |
(If Q8 = Yes) What is that reason? [Open-ended response] |
Q8B |
(If Q8A = “don’t know” or “no reason”) Would you say it is for one of these reasons?
|
Q9 |
(If Q6B NOT N/A or No Family Members or Q6C NOT N/A or No Family Members) Has any member or your family told you about his or her wish to donate or not to donate his or her organs after death? [Response Choices: Yes, No, (DK, Refused, N/A)] |
Q10 |
(If Q6B NOT N/A or No Family Members or Q6C NOT N/A or No Family Members) If you didn’t know your family member’s wishes, how likely would you be to donate his or her organs upon his or her death, if it were up to you? Would you be very likely, somewhat likely, not very likely, or not at all likely? |
Q11 |
(If
Q6B NOT
N/A or No Family Members or Q6C NOT
N/A or No Family Members) If a family member |
Q12 |
Now, I am going to read you a number of statements. For each one, please tell me if you strongly agree, somewhat agree, somewhat disagree, or strongly disagree.
|
Q14F |
Do you believe these statements about organ donation are true? [Response Choices: Yes, No, (DK, Refused, N/A)]
|
Q14E |
|
Q15 |
A. A close friend B. A family member C. An acquaintance D. Someone you don’t know |
Q15A |
(If Q15 = not very likely or not at all likely) What are your reasons for not agreeing to donate an organ while you are living? [Open-ended response]
|
Q16 |
Now I am going to read you several statements. For each one, please tell me whether you strongly agree, somewhat agree, somewhat disagree, or strongly disagree. [rotate]
(If Q16A=Strongly Agree or Somewhat Agree) “Why do you think minority patients are less likely to receive organ transplants?” [open ended response]
|
Q16N |
1. If I were a donor, I would like my organs to go to the more medically urgent patients regardless of where they live in the U.S., OR 2. If I were a donor, I would like my organs to go to a patient in my local area even if they are not the more medically urgent patients waiting for an organ. |
Q17 |
Some
countries assume that people will
|
Q17A |
(If Q17 = oppose or strongly oppose) Is there a particular reason why you oppose presumed consent? [Open-ended response] |
|
|
Q17C |
If the United States changed to a presumed consent system, where people will be organ donors unless they opted out, would you choose to opt out? [Response Choices: Yes, No, (DK, Refused, N/A)] |
Q18 |
It has been suggested that more organs would be donated if families who donate the organs of a deceased loved one received assistance in paying funeral expenses, a cash award to the donor's estate, or a cash award to a charity of the family's choice. Would payments like these make you more likely or less likely to donate (read and rotate), or would it have no effect. [Response Choices: More Likely, Less Likely, No Effect, (DK, Refused, N/A)] A. Your own organs B. A family member’s organs at their time of death |
Q19 |
(If Q18A or Q18B = more likely) Is there a particular reason why a payment would make you more likely to donate your organs or a family member's organs? |
Q19A |
(If Q19= Yes) What reason? [Open-ended response] |
Q20 |
(If Q18A or Q18B = less likely) Is there a particular reason why a payment would make you less likely to donate your organs or a family member's organs? |
Q20A |
(If Q20= Yes) What reason? [Open-ended response] |
Q22 |
Now I am going to read you several statements. For each one, please tell me whether you strongly agree, somewhat agree, somewhat disagree, or strongly disagree.
|
Q15E |
Recent medical breakthroughs have resulted in successful face and hand transplants for people who have suffered the loss of limbs or facial disfigurement from traumatic injuries, such as accidents and war. How willing would you be (Insert response text – rotate)? Would you say you are very willing, somewhat willing, not very willing, or not at all willing?
|
Q15E1 |
If your family member signed up to be an organ donor, upon their death will you also be willing to (Insert response text – rotate)? Would you be very willing, somewhat willing, not very willing, or not at all willing?
|
|
|
Q23A |
Have
you, or has anyone close to you, ever been an organ |
Q23B |
Have you, or has anyone close to you, ever received an organ transplant? [Response Choices: Yes, No, (DK, Refused, N/A)] |
Q23C |
Are you, or is anyone close to you, currently waiting for an organ? [Response Choices: Yes, No, (DK, Refused, N/A)] |
|
|
Q26A |
Do you believe there is an age when someone is too old to donate an organ upon their death? |
Q26A2 |
(If Q26A = Yes) What is that age? [open ended number] |
Q26B |
Do you believe there is an age when someone is too old to receive an organ? [Response Choices: Yes, No, (DK, Refused, N/A)] |
Q26B2 |
(If Q26B = Yes) What is that age? [open ended number] |
Q28 |
In general, how would you rate your overall health? Would you say excellent, very good, good, fair, poor? |
Q29 |
What best describes your religion, if any? Would you say Protestant, Evangelical, Roman Catholic, Orthodox, Mormon, Jewish, Muslim, Buddhist, atheist, agnostic, or something else? |
Q30 |
How important is religion to you? [Response Choices: very important, somewhat important, not very important, not at all important (DK, Refused, N/A)] |
D1 |
What is your sex? [Response Choices: Male, Female, Other, (DK, Refused, N/A)] |
D2 |
What is your age? [Open-ended response] |
D3 |
What is the highest level of education you have completed? [Response Choices: less than high school graduate, high school graduate, some college, trade/technical/vocational training, college graduate, post-graduate work/degree, (DK, refused, N/A)] |
D4A |
What is your current marital status? [Response Choices: single/never been married, married, separated, divorced, widowed, domestic partnership/living with partner (not legally married), (DK, Refused, N/A)] |
|
|
|
|
|
|
|
|
|
|
D7 |
Do you work in the healthcare profession? [Response Choices: Yes, No, (DK, Refused, N/A)] |
D8 |
What is your zip code? |
D11 |
What best describes your race (can select more than one option)? Would you say White, Black or African American, Asian, American Indian or Alaskan Native, Native Hawaiian or Other Pacific Islander, or something else? |
D12 |
Would you describe yourself as Hispanic or Latino? [Response Choices: Yes, No, (DK, Refused, N/A)] |
D13 |
What best describes your current employment status? [Response Choices: Employed full-time, Employed part-time, Taking care of home or family but not working for pay, Not employed but looking for work, Student, Retired, Unable to work, Other, (DK, Refused, N/A)] |
D14 |
Do you currently have any type of health insurance plan or health coverage? [Response Choices: Yes, No, (DK, Refused, N/A)] |
D15 |
(If D14 = Yes) What best describes the source of your health plan. If you have more than one, please select your primary plan. [Response Choices: Private plan, such as through an employer, the federal insurance exchange at healthcare.gov, or a state insurance plan; Medicaid; Medicare; Veterans’ Affairs; TRICARE/Military Health System; Other government or state plan; Other; (DK, Refused, N/A)] |
D9 |
What is your total ANNUAL household income, before taxes? Please include income from wages and salaries, remittances from family members living elsewhere, farming, and all other sources. Please say “yes” when we reach your annual household income. [Response choices: Less than $20,000, $20,000 or more, but less than $30,000 $30,000 or more, but less than $40,000 $50,000 or more but less than $60,000 $60,000 or more, but less than $75,000 $75,000 or more but less than $100,000 $100,000 or more, but less than $150,000 $150,000 or more (DK, Refused, N/A)]
|
D10 |
|
Page
Expiration date: XX/XX/201X
File Type | application/vnd.openxmlformats-officedocument.wordprocessingml.document |
File Title | NSQuestionsRedline20180126 |
Author | Tom Wilkinson |
File Modified | 0000-00-00 |
File Created | 2021-01-20 |