Form 1 NLM ClinVar 2016 User Survey Instrument

OMB Control Number: 0925-0648
Expiration Date: 03/31/2018
Public reporting burden for this collection of information is estimated to average 5 minutes per response,
including the time for reviewing instructions, searching existing data sources, gathering and maintaining the
data needed, and completing and reviewing the collection of information. An agency may not conduct or
sponsor, and a person is not required to respond to, a collection of information unless it displays a
current valid OMB control number. Send comments regarding this burden estimate or any other aspect of
this collection of information, including suggestions for reducing this burden, to NIH, Project clearance Branch,
6705 Rockledge Drive, MSC 7974, Bethesda, MD 20892-7974, ATTN: PRA (0925-0648). Do not return the
completed form to this address.
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1. How often do you use ClinVar?
Every day
Several times a week
Several times a month
About once a month
Less than once a month
This is my first visit

2. What were you looking for on your current visit to ClinVar?
A specific variant
All variants in a gene

Variants associated with a disease or phenotype
Variants submitted by a specific group
Other (please specify)

3. How easy was it to find what you were looking for on ClinVar?
Extremely easy
Very easy
Somewhat easy
Not so easy
Not at all easy

4. How easy is it to understand the information on ClinVar?
Extremely easy
Very easy
Somewhat easy
Not so easy
Not at all easy

5. Overall, how satisfied are you with ClinVar?
Extremely satisfied
Very satisfied
Moderately satisfied
Slightly satisfied
Not at all satisfied

6. Which category describes you best?
Lab director
Genetic counselor

Medical geneticist
Pathologist
Other type of physician
Researcher
Student
Other (please specify)

7. What would make you more likely to use ClinVar?

8. Any other comments?

9. How likely is it that you would recommend ClinVar to a friend or colleague?
Not at all likely
0

1

Extremely likely
2

3

4

5

Done

6

7

8

9

10