2 Individual Interviews Moderator's Guide

Attachment 2: Individual Interviews Moderator’s Guide

for Health Care Providers

Phase II

OMB No.: 0925-0648

Expiration Date: 1/31/2015

PRIVACY ACT NOTIFICATION STATEMENT

Collection of this information is authorized by The Public Health Service Act, Section 412 (42 USC 285 a-1). Rights of study participants are protected by The Privacy Act of 1974. Participation is voluntary, and there are no penalties for not participating or withdrawing from the study at any time. Refusal to participate will not affect your benefits in any way. The information collected in this study will be kept in private under the Privacy Act. Names and other identifiers will be separated from information provided and will not appear in any report of the study. Information provided will be combined for all study participants and report as summaries. You are being contacted by telephone or email to participate in this interview in-person so that we can improve the features and functions of our website.

NOTIFICATION TO RESPONDENT OF ESTIMATED BURDEN

Public reporting burden for this collection of information is estimated to average 60 minutes per interview, including the time for reviewing instructions, searching existing data sources, gathering and maintaining the data needed, and completing and reviewing the collection of information. An agency may not conduct or sponsor, and a person is not required to respond to, a collection of information unless it displays a currently valid OMB control number. Send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden to: NIH, Project Clearance Branch, 6705 Rockledge Drive, MSC 7974, Bethesda, MD 20892-7974, ATTN: PRA (0925-0648). Do not return the completed form to this address.

Thank you for agreeing to participate in this interview. You have been invited to participate because you are a provider who has been identified as a member of the oncology care team.

To ease anxiety and psychological distress related to the cancer diagnosis and treatment, emerging research has revealed that patients with any form of cancer want more information and benefit psychologically from a participatory approach to their healthcare. We are trying to evaluate the information needed when first diagnosed, the best ways to provide that information, and what we can do to help people make an informed decision, and what we can do to empower patients in their care experience.

Site Demonstration:

We have developed a computer program/website for women with cancer to use as a tool to access important information related to treatment, support groups, educational materials, etc. For example, the site includes video clips, FAQs (e.g. what is chemo?), patient education materials, and a way to communicate with providers. We are also adding a feature where patients can report their symptoms and a nurse would contact them if they report moderate to severe symptoms. By regularly assessing their symptoms, different levels of help can be provided (from automated information to a personal call).  

What do you think? Do you think this is accessible to the women you serve?

1. Do you think this would be useful for your patients? Is this something you would like to use?

2. Which of these mock screens might work best for you and why?

3. How would this fit with your usual way of handling patient referrals for diagnosis?

4. Patients will be able to report their symptoms. In what format and how often would you like to receive these reports?

5. Are there any other features you would like this computer program to have?

6. What barriers, if any, do you see for patients in using this type of program? For providers? If so, could you please discuss the barriers and provide possible solutions if applicable?

7. What do you think are the strengths and weaknesses of using a computer program to provide patients with information?

8. Good communication between doctor and patient is important. What challenges do you think patients face when talking with their doctors? What can we do, through this interactive computer program, to help them with these communications?

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