Form 001_CAAI_Researh

Attachment D

Research Network Interview Guide

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CAAI Evaluation

Semi-Structured Interview Guide for Research Network grantees

1. Conduct Research Leading To Evidence-Based Interventions for Children and Adolescents with ASD/DD

Proposals Developed/Studies funded

Based on all the information we have received from you, we understand that your grant has focused on research leading to improvements in interventions that address the [physical/behavioral] health needs of children and adolescents with ASD and other DD. [provide list of 2 ongoing research studies]. Is our understanding accurate? Are there any other studies you are working on that are funded as part of your CAAI grant?

What are the challenges in developing and conducting the research?

How have the research findings been disseminated?

How effective has your Network been at publicizing research findings?

What has been the impact of your Network’s research findings on individuals with ASD and other DD?

Organization/CREs

What strategies did you use to develop and fund research concepts and proposals?

How do you rate and rank these proposals?

We understand that you have a variety of partners and Collaborating Research Entities (CREs). [list 2/3 partners; list 4/15 CREs] How have the CREs helped you in the research efforts?

Sustainability

What strategies, if any, were implemented to sustain this process after the federal grant period ends?

Which activities will continue? Which will end?

For those activities that will continue, what will be the source of funding?

Have you secured any outside funding for projects this year?

II. Test and Validate Tools that Can be Used to Improve Outcome Measures

Another area of your grant activities is increasing the number of validated tools for interventions, particularly using those measures that can be completed rapidly and unobtrusively and can be applied in a number of settings by non-researchers. [provide list of tools/measures that have been validated]. Is this correct?

Have these been adapted for developmental age and racial/ethnic background of the child?

What steps have you taken to ensure that the measures are relevant to underserved populations?

What are the challenges in validating the tools or developing the measures?

How have the measures/tools been disseminated? [How has the Network promoted adoption of these measures/tools?]

Where and how have the measures/tools been adopted?

How effective has the Network been at publishing research findings related to measures/tools?

What has been the impact of the measures/tools?

III. Develop Evidence Based Guidelines for Implementation of Interventions

We understand that the Network is focused on the development of treatment guidelines that are grounded in evidence. [provide list of guidelines/manuals]. Is our understanding accurate?

Have these been adapted for age and racial/ethnic background of the child?

What steps have you taken to ensure that the guidelines are relevant to underserved populations?

What are the challenges the Network faced in developing these guidelines?

How have the guidelines been disseminated? [How has the Network promoted the adoption of these guidelines?]

Where and how have the guidelines been adopted?

How effective has the Network been at publishing research findings related to guidelines?

What has been the impact of the guidelines?

IV. Disseminate Information of Research, Guidelines and Validated Tools for ASD/DD Interventions

We also understand that your Network has also focused on dissemination of information for health professionals and families impacted by ASD and other DD.

Which efforts have been most successful and why?

Would you talk about any challenges associated with training that the Network has faced?

What was the impact of these activities?

How have the CREs helped to increase dissemination? How effective were they in these activities?

Describe the Network’s process for public website development and implementation?

Did you develop a virtual home (public and private domain)? How successful was the Website?

Training symposiums, Training at CREs

We also understand the Network’s grant has also focused on training initiatives for [list training target, e.g., providers, parents], and this training has [describe our understanding of their training initiatives]. Is our understanding accurate?

Did the Network develop its own training materials or did it use materials developed by others? What were the ones developed internally?

What have been the key objectives or goals of this training?

Has the training met these objectives or goals? If yes, how do you know? If not, why not?

Have other organizations offered [provider or family training] at the same time? How has the Network coordinated with them? [probe: other CAAI programs, state public health programs, LEND annual conference]

How successful have these partnerships been?

Grand Rounds, Presentations, Conferences, Speeches

To build awareness, you have also [describe our understanding of ground rounds, speeches and presentations]. Is our understanding accurate?

Outreach Activities

To build awareness, you have also [describe our understanding of their outreach activities]. Is our understanding accurate?

Have other organizations offered outreach at the same time? How has the Network coordinated with them? [probe: other CAAI programs, state public health programs, LEND annual conference]

How successful have these partnerships been?

Did the Network develop its own outreach materials or did it use materials developed by others? What were the ones developed internally?

Probe: Use of CDC materials or materials developed by others

V. Reducing Barriers to ASD/DD Interventions

Minority and Underserved Populations

Have any of the Network’s efforts addressed service barriers to intervention focused on reducing disparities for minority and underserved populations?

If yes, please explain. What specific barriers (if any) have you focused on?

What progress was made to reducing barriers?

Would you describe the challenges faced in the Network’s efforts to reduce barriers?

How effective were these activities?

What steps, if any, did you take to ensure the participation of stakeholder groups, including underserved and minority populations, in the design and execution of study protocols?

Have the CREs helped in this effort?

How has the awareness of research increased among various minority and underserved population groups?

Family Involvement

On Performance Measure 7, you reported a total score related to the degree of family involvement was [insert score] out of a possible 18. What successes/challenges gave rise to that score? How can the research network potentially improve the involvement of families in their activities?

VI. Wrap Up

How successful was the network approach to research?

Probe: Successes/positive aspects – shortcomings and negative aspects.

Thank you for your time. We greatly appreciate your assistance.

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