Form #5 Form #5 Online Survey

Evaluation of AHRQ's Effective Health Care Program

Attachment E2-Online Survey-Stakeholders

Online Survey with EHC Program Users and Stakeholders

OMB: 0935-0160

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Attachment E: Online Survey Questionnaire

Online Survey Questionnaire






Number

Follow-Up

(Yes/No)

Question

Potential Answers

Form Approved
OMB No. 0935-XXXX
Exp. Date XX/XX/20XX

The Effective Health Care Program (EHC) at the Agency for Healthcare Research and Quality (AHRQ) is undertaking an evaluation of the program’s governance process and outcomes. There are various components to this analysis. This survey will solicit feedback about the EHC program’s governance from a broad and diverse group of individuals. The goal of the survey is to capture a robust view of the EHC program governance system from the vantage point of all stakeholders and within certain stakeholder groups, particularly related to the following topics:

• EHC program Goals
• Research Topic Selection Process
• Priority Conditions and Populations
• EHC program Research Impact
• Engaging Stakeholders

Your participation is extremely valuable to this evaluation and is greatly appreciated.


Public reporting burden for this collection of information is estimated to 10-15 minutes per response on average, the estimated time required to complete the survey. Please send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden, to: AHRQ Reports Clearance Officer. Attention: PRA, Paperwork Reduction Project (0935-XXXX) AHRQ, 540 Gaither Road, Room # 5036, Rockville, MD 20850.


Which best describes your affiliated organization? [check all that apply]

  1. The EHC program Stakeholder Group

  2. Employer or Health Related Business Group

  3. Federal Partner

  4. Healthcare Industry

  5. Healthcare Provider

  6. Patient/ Consumer/ Advocacy Organization

  7. Pharmacy & Therapeutic

  8. Policy Maker

  9. Professional Organization

  10. Researcher

  11. Third Party Healthcare Payer

  12. Other (please specify)


Does your organization have a vested interest in research on any of the following specific conditions? [ check all that apply]

  1. Muscle, bone, and joint conditions

  2. Cancer

  3. Heart and blood vessel conditions

  4. Brain and nerve conditions

  5. Mental health

  6. Developmental delays, ADHD, autism

  7. Diabetes

  8. Functional limitations and physical disabilities

  9. Infectious diseases and HIV/AIDS

  10. Obesity

  11. Digestive system conditions

  12. Pregnancy and childbirth

  13. Breathing conditions

  14. Alcohol and drug abuse

  15. None of the above



EHC PROGRAM GOALS



The EHC program was established as a part of a mandate to provide objective, timely, and rigorous assessments of therapeutics and other health care interventions.


Do you agree that the EHC program is providing objective assessment of therapeutics and other interventions?

  1. Strongly Agree

  2. Agree

  3. Neither agree or disagree

  4. Disagree

  5. Strongly Disagree


Please, elaborate on your response.

Open ended


Do you agree that the EHC program is providing timely assessment of therapeutics and other interventions?



Please, elaborate on your response.

Open ended


Do you agree that the EHC program is providing rigorous assessment of therapeutics and other interventions?

    1. Strongly Agree

    2. Agree

    3. Neither agree or disagree

    4. Disagree

    5. Strongly Disagree


Please, elaborate on your response.

Open ended

8b


Do you agree that the EHC program assessment of therapeutics and other intervention is useful?

  1. Strongly Agree

  2. Agree

  3. Neither agree or disagree

  4. Disagree

  5. Strongly Disagree

8c


Please elaborate on your response.

Open ended


Do you agree that the EHC program provides effective translations of complex research findings into publications for policymakers?

  1. Strongly Agree

  2. Agree

  3. Neither agree or disagree

  4. Disagree

  5. Strongly Disagree

10


Please, elaborate on your opinion.

Open ended response requested

11.


Do you agree that the EHC program provides effective translations of complex research findings into publications for health care providers?

  1. Strongly Agree

  2. Agree

  3. Neither agree or disagree

  4. Disagree

  5. Strongly Disagree

12.


Please, elaborate on your opinion.

Open ended

13.


Do you agree that the EHC program provides effective translations of complex research findings into publications for consumers/patients?

  1. Strongly Agree

  2. Agree

  3. Neither agree or disagree

  4. Disagree

  1. Strongly Disagree

14.


Please, elaborate on your opinion.

Open ended



RESEARCH SELECTION PROCESS


15.


What has been your role in suggesting topics for research? [check all that apply]

  1. Solicited by the EHC program to nominate a research topic

  2. Collaborated with the EHC program to nominate a research topic

  3. Nominated, without solicitation from the EHC program, a research topic

  4. Other – please specify

  5. No role

16.

15(e)

Do you have any interest in suggesting topics for research?

  1. Very interested

  2. Interested

  3. Moderately Interested

  4. Of Little Interest

  5. Uninterested

17.

15(e)

Do you know how to nominate a research topic?

  1. Yes

  2. No

18.


In your opinion, can the transparency of the EHC program’s selection of research topics be improved?


  1. Strong Need for Improvement

  2. Some Need for Improvement

  3. No Need for Improvement

  4. No Opinion

19.

18(a),

18(b)

What improvements would you recommend to make the selection process more transparent?

Open-ended

20.


The mandated criteria for prioritizing research topics in the EHC program are “health care items or services that:

    • impose high costs on Medicare, Medicaid, or SCHIP programs

    • may be over or underutilized, and

    • those which may significantly improve the prevention, treatment, or cure of diseases and conditions which impose high direct or indirect costs on patients or society.

Do you think the EHC program research selection process has been guided by these criteria?


  1. Always

  2. Usually

  3. Occasionally

  4. Usually Not

  5. Never

  6. No opinion

21.


Beyond the mandated criteria what do you feel significantly affects the selection of research topics?

Open ended

22.


Beyond the mandated criteria what do you feel should affect the selection of research topics?

Open ended

22b


I believe/think that my center has been appropriately engaged by the EHC stakeholders in the topic nomination and selection process.

  1. Strongly Agree

  2. Agree

  3. Neither Agree or Disagree

  4. Disagree

  5. Strongly Disagree

22c


Please, elaborate on your response.

Open ended



PRIORITY CONDITIONS & POPULATIONS


23.


Which of the following EHC program priority conditions MOST warrant additional research by the EHC program? [you may check up to 3 boxes]

  1. Muscle, bone, and joint conditions

  2. Cancer

  3. Heart and blood vessel conditions

  4. Brain and nerve conditions

  5. Mental health

  6. Developmental delays, ADHD, autism

  7. Diabetes

  8. Functional limitations and physical disabilities

  9. Infectious diseases and HIV/AIDS

  10. Obesity

  11. Digestive system conditions

  12. Pregnancy and childbirth

  13. Breathing conditions

  14. Alcohol and drug abuse

  15. None

24.


Please, explain further what specific research is needed.

Open ended

25.


Which of the following priority populations have the most pressing needs/issues that have not been sufficiently addressed by the research of the EHC program? [you may check up to 3 boxes]



  1. Medicare – elderly population

  2. Medicare – disabled population

  3. Medicaid – children

  4. Medicaid – adults

  5. SCHIP

  6. Other

  7. None

26.


Please, explain further what specific research is needed.

Open ended

27.


Which of the following priority populations have needs/issues that have not been MOST sufficiently addressed by the research of the EHC program? [you may check up to 3 boxes]


  1. Low Income Groups

  2. Minority Groups

  3. Women

  4. Children

  5. Elderly

  6. Individuals with Special Needs

  7. Rural populations

  8. None

28.


Please, explain further what specific research is needed and why.

Open ended



EHC PROGRAM RESEARCH IMPACT


29.


For what purposes have you or your organization used EHC program research publications? [check all that apply]


  1. Aide clinical decision-making

  2. Change practice guidelines

  3. Change formularies

  4. Inform regulation

  5. Inform legislation

  6. Assist with personal health care decisions

  7. Other (please specify)

  8. Have not used publications

30.


For what other purpose(s)?

Open ended

31.


What have you observed as the impact of the EHC program publications? [check all that apply]

  1. Provided new research

  2. Aided clinical decision-making

  3. Changes in practice guidelines

  4. Changes in formularies

  5. Influence on regulation

  6. Influence on legislation

  7. Changes to effective clinical practice

  8. Changes in patient behavior

  9. Improved clinical outcomes

  10. Improved communication between patients/consumers and clinicians

  11. Improved economic outcomes

  12. Improved quality of life

  13. Other (please specify)

  14. No impact

32.


What other impact(s)?

Open ended

33.


Overall, how significant/influential was this impact(s) for your organization?

  1. Very Significant

  2. Significant

  3. Moderately Significant

  4. Of Little Significance

  5. Insignificant

  6. No opinion

34.


What type of EHC program research/publications have you found to be the most useful? [check all that apply]





  1. Effectiveness or comparative effectiveness review

  2. Technical brief

  3. New research report

  4. Summary guide for clinicians

  5. Summary guide for consumers

  6. Summary guide for policymakers

  7. Research method publication

  8. Other (please specify)

35.


What other publication(s)?

Open ended

36.


How would you rate the general awareness of the EHC program’s research and publications among your professional colleagues?

  1. Completely aware

  2. Mostly aware

  3. Slightly aware

  4. Slightly unaware

  5. Mostly unaware

  6. Mostly unaware

  7. Completely unaware

  8. Don’t know



ENGAGING STAKEHOLDERS


37.


How would you change the representative range of stakeholders (patients, providers, policy makers) involved in the EHC program?

  1. Increase

  2. Leave the same

  3. Decrease

  4. No opinion

38.

37(a)

Which type(s) of stakeholders would you add?

Open ended

39.

37(c)

Which type(s) of stakeholders would you remove?

Open ended

40.


The involvement of outside stakeholders in the nomination of research topics should be:

  1. Greater than current level

  2. Current level

  3. Less than current level

  4. No opinion

41.


How would you change their involvement?

Open ended

42.


The involvement of outside stakeholders in the selection of research topics should be:

  1. Greater than current level

  2. Current level

  3. Less than current level

  4. No opinion

43.


How would you change their involvement?

Open ended

44.


The involvement of outside stakeholders in conducting research should be:

  1. Greater than current level

  2. Current level

  3. Less than current level

  4. No opinion

45.


How would you change their involvement?

Open ended

46.


The involvement of outside stakeholders in the translation of research results into tools and publications for the general public should be:

  1. Greater than current level

  2. Current level

  3. Less than current level

  4. Don’t Know

47.


How would you change their involvement?

Open ended

48.


The involvement of outside stakeholders in the distribution of publications should be:

  1. Greater than current level

  2. Current level

  3. Less than current level

  4. Don’t Know

49.


How would you change their involvement?

Open ended

50.


The involvement of outside stakeholders in the implementation of research results should be:

  1. Greater than current level

  2. Current level

  3. Less than current level

  4. Don’t Know

51.


How would you change their involvement?

Open ended

52.


How else could the EHC program involve outside stakeholder groups in order to meet its mandate?

open text

The following set of questions focus on stakeholders. There are two distinct groups of stakeholders in which we are interested. “EHC program Stakeholder Group” refers to an official group of selected members from whom the EHC program seeks input, guidance, and advice. “Outside stakeholders” refers to community members who have an interest in the work of the EHC program but are not members of the EHC program Stakeholder Group.

53.


Are you familiar with the EHC program Stakeholder Group that provides guidance to the EHC program?

  1. Yes

  2. Somewhat

  3. No

54.

53(a),

53(b)

The issues on which the EHC program seeks the consultation of the EHC program Stakeholder Group should be:

  1. Expanded

  2. Remain the Same

  3. Reduced

  4. Expanded and Reduced

  5. No opinion

55.

53(a),

53(b)

Which issue(s)?

Open ended

56.

53(a),

53(b)

Are you aware of the process by which members are selected for the EHC program Stakeholder Group?

  1. Yes

  2. No

57.

56(a)

I feel the selection process is:

  1. Very Fair

  2. Fair

  3. Unfair

  4. Very Unfair

  5. No Opinion

58.

53(a),

53(b)

Do you feel that the composition of EHC program Stakeholder Group fairly reflects the various types of EHC program stakeholders?

  1. Completely

  2. Somewhat

  3. Not at all

  4. No opinion

59.

58(b),

58(c)

Which essential stakeholders are unrepresented or underrepresented on the EHC program Stakeholder Group?

Open ended

60.


Do the opinions of and/or the guidance provided by the EHC program Stakeholder Group align with those of outside stakeholders in general?

  1. Completely

  2. Somewhat

  3. Not at all

  4. No Opinion

61.

60(b),

60(c)

Where do the opinions differ?

Open ended

62.


Overall, how would you rate your experience as a stakeholder of the EHC program?

  1. Excellent

  2. Good

  3. Satisfactory

  4. Needs Improvement

  5. Poor

63.


Please explain/elaborate on your rating


Thank you for sharing your experiences and thoughts about the Effective Health Care (EHC) program at the Agency for Healthcare Research and Quality (AHRQ).  Your input and responses will help us build a better, more efficient structure and program. 


We appreciate your valuable time and feedback. 


Should you have any thoughts, questions or concerns, please do not hesitate to contact me at ywang@impaqint.com.


Ying Wang, PhD

Project Director, Evaluation of AHRQ EHC Program Governance and Priority Setting

IMPAQ International




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