0990-Trends in the USAttachment J_1999ItemsEXCLUDED

Attachment J

Items from the 1999 KFF/PSRAI Questionnaire Excluded from the Revised Instrument

Attachment J

ITEMS FROM THE 1999 KFF/PSRAI QUESTIONNAIRE EXCLUDED FROM THE REVISED INSTRUMENT (N=56)

Item from 1999 Questionnaire	Question	Focus of Item/Domain
1	Do you think the average African American is better off, worse off or just as well off as the average white person in terms of (form A: housing; education; form B: employment; income)?	Social Issues
2	Now thinking specifically about health care, how would you rate the overall quality of our health care system? If A means excellent, B means good, C average, D poor and F failing, what letter grade would you give our health care system?	Perceptions of the U.S. Health System
3	(ask if form A) How much of the time do you think you can trust (hospitals; clinics or health centers; health insurance companies, including HMOs and other managed care plans; Medicaid, the government program that helps pay medical bills for people with low incomes; Medicare, the government program that helps pay medical bills for people over age 65 and the disabled) to do what is best for patients or customers? Almost all of the time, most of the time, only some of the time or almost none of the time?	Racism In Healthcare
4	(ask if form B) How much of the time do you think you can trust (the police; the fire department; local schools; doctors and other health care providers; local elected officials; the courts; Congress or politicians in Washington) to do what is right for you or your community? Almost all of the time, most of the time, only some of the time or almost none of the time?	Social issues
6	Generally speaking, how often do you think our health care system treats people unfairly based on (all: what their race or ethnic background is; whether or not they have health insurance; form A: whether they are male or female; how well they speak English; whether or not they are physically disabled; how they are dressed or groomed; form B: how well-educated they are; whether or not they are overweight; how much money they have; their sexual orientation—that is, if they are gay or lesbian)? Very often, somewhat often, not too often or never?	Perceptions of the U.S. Health System
7	How often do you think a person’s race or ethnic background affects whether they can get (routine medical care when they need it; specialized treatments or surgery when they need it; health insurance to pay for medical care)? Very often, somewhat often, not too often or never?	Perceptions of the U.S. Health System
8	As I mention some different areas of our society, please tell me if you think racism—that is, people being treated worse than others because of their race or ethnicity—is a major problem, a minor problem or not a problem at all in this area of society. Is racism a major problem, a minor problem or not a problem at all in (education; the workplace; health care; housing)?	Racism in Healthcare
9	Thinking again about health care, how often do you think racism occurs when a patient and doctor are of different racial or ethnic backgrounds? Very often, somewhat often, not too often or never?	Racism in Healthcare
10	And what about if the patient and doctor are of the same racial or ethnic background? Does racism occur very often, somewhat often, not too often or never?	Racism in Healthcare
21	Now I am going to read you some statements. Please tell me whether you think each statement is true or false. African Americans with heart disease are just as likely as whites who have heart disease to get specialized medical procedures and surgery. (False) Whites with HIV or AIDS are more likely than African Americans with HIV or AIDS to get the newest medicines and treatments. (True)	Perceptions of Health Disparities
22	Ask Q22 if think health care system treats people unfairly based on race or ethnicity (Q6a=1-3): Earlier you expressed the view that the health care system treats people unfairly based on their race or ethnicity. I am going to read you a series of possible reasons why this is so. For each please tell me whether you think this is a major reason, a minor reason, or not a reason for why the system treats people unfairly based on their race or ethnicity. Form A: Most doctors are white, and many do not understand the health care needs and how to treat the illnesses of African Americans, Latinos and other minority groups. Most doctors assume that African Americans, Latinos and other minority groups do not have enough insurance or money to pay for the care they get. Most doctors do not think African Americans, Latinos and other minority groups do enough to take care of their own health. Form B: Many African Americans, Latinos and other minority groups live in areas where there are fewer doctors or other healthcare providers. African Americans, Latinos and members of other minority groups prefer different health care treatments than whites. Medical researchers do not pay enough attention to how health conditions affect racial or ethnic minority groups.	Perceptions of Health Disparities
23	These next questions are about your personal experiences with our health care system. Do you have a regular doctor or other health professional who you see for general health care, that is, when you are sick, need a check-up or want advice about your health?	Satisfaction with Healthcare
24	Ask Q24-A26 if have regular doctor or health care provider [Q23=1] I would like you to give this doctor or health professional an overall letter grade. A means excellent, B means good, C average, D poor and F failing.	Satisfaction with Healthcare
25	Ask Q24-A26 if have regular doctor or health care provider [Q23=1] Is this person a man or a woman?	Satisfaction with Healthcare
26	Ask Q24-A26 if have regular doctor or health care provider [Q23=1] Is this person white, African American, Latino, Asian or some other background?	Satisfaction with Healthcare
27	Ask Q27A-Q28 if do not have regular doctor or health care provider [Q23=2-9] Q27A. Thinking about your last visit for a health care appointment, what overall letter grade would you give the doctor or health professional? A means excellent, B means good, C average, D poor and F failing. Q27B. Was the doctor or other health provider a man or a woman?	Satisfaction with Healthcare
28	Ask Q27A-Q28 if do not have regular doctor or health care provider [Q23=2-9] Was this person white, African American, Latino, Asian or some other background?	Satisfaction with Healthcare
29	Thinking about your most recent visit with a doctor or other health provider, we would like to know a little about how you felt during this visit. Did you feel the doctor or provider knew enough or asked enough questions about your health history, such as what medications you take, whether you have ever been hospitalized and your family health history? Did the doctor or provider explain things in a way you could understand? Were there any tests or treatments you felt you needed but did not get? Did you feel the doctor or provider and other staff members paid attention to you and your concerns?	Satisfaction with Healthcare
30	Many Americans do not have health insurance. Are you now covered by any form of health insurance or health plan, including any private insurance plan or a government program such as Medicare or (Insert state assistance program), or don’t you have health insurance at this time?	Health Coverage
31	Ask Q31-Q32 if have health insurance [Q30=1] Which of the following is your main source of health insurance coverage? Private insurance through an employer Private insurance from some other source Medicare, the government program that helps pay bills for people over age 65 and the disabled (Insert state assistance program), the government program that helps pay medical bills for people with low incomes Some other public medical assistance program (Don’t know) (Refused)	Health Coverage
32	Ask Q31-Q32 if have health insurance [Q30=1] Based on all your experiences with your current main health insurance plan, what overall letter grade would you give it? A means excellent, B means good, C average, D poor and F failing.	Health Coverage
33	How often do you usually have health care exams or check-ups? Would you say more than once a year, about once a year, less than once a year, or is there no particular schedule for these health care exams or appointments?	Healthy Behavior
34	At what type of facility do you usually receive your medical care? Is it a doctor’s office, a clinic or health center, an HMO, a hospital emergency room, a hospital outpatient department or some other place?	Healthy Behavior
36	Thinking about all of the experiences you have had with health care visits in the last few years, have you ever felt that the doctor or health provider you saw or any other staff members judged you unfairly or treated you with disrespect because of (your ability to pay for the care; something in your medical history; the treatment you needed that day; how well you speak English; your race or ethnic background; the type of health insurance you have or because you do not have health insurance)?	Satisfaction with Healthcare
37	(ask if form A) Do you think your experiences in society, in general, would be better, worse or no different if you were (D1=1, a woman; D1=2, a man; of another race or ethnic background)?	Social Issues
38	(ask if form B) Do you think your experiences with our health care system would be better, worse or no different if you were (D1=1, a woman; D1=2, a man; of another race or ethnic background)?	Racism in Healthcare
39	Over the past few years, (have you; has a family member; has a friend or someone you know) been treated unfairly specifically because of race or ethnic background when seeking medical care?	Racism in Healthcare
40	Thinking about the future, how concerned are you that you or a family member will someday be treated unfairly specifically because of your race or ethnic background when seeking medical care? Are you very concerned, somewhat concerned, not too concerned or not at all concerned? Q40B. If you had to choose, would you prefer to be treated by a doctor or nurse of your own race or ethnic group, or not?	Racism in Healthcare
41	Do you believe our government should spend more money on programs to make sure African Americans, Latinos and other minority groups have the same opportunities as whites in terms of (education; employment and income; health care)?	Social Issues
42	Ask Q42 if support increased government spending to ensure equal opportunity in area [item in Q41=1] Would you still support government spending in this if it mean you had to pay more in taxes? Ask Q42B if oppose increased government spending to ensure equal opportunity in area [item in Q41=2] Would you still oppose government spending even if it meant that African Americans, Latinos and other minorities continued to receive unequal opportunities in this area?	Social Issues
43	(ask if form A) In your opinion, who should be primarily responsible for ensuring that patients get the same quality of health care to meet their needs regardless of their race and ethnic background? The government, the medical community, both or neither?	Social Issues
44	(ask if form B) In your opinion, who should be primarily responsible for setting and enforcing standards for how all patients should be treated by doctors and other health providers regardless of their race or ethnic background? The government, the medical community, both or neither?	Social Issues
45	Have you ever heard of the Tuskegee Experiment involving African American men?	Social Issues
46	Ask Q46 if heard of Tuskegee Experiment [Q45=1] As far as you know, when people talk about the Tuskegee Experiment, are they referring to (a much-criticized government study of syphilis treatment involving African American men; the African American airmen who fought in World War II; a study of heart disease among African American men)?	Social Issues
D2	In general, how would you describe your own health? Is it excellent, good, only fair or poor?	Demographics
D3	In politics today do you consider yourself a Republican, a Democrat or an Independent?	Demographics
D5	Would you describe your political views as very conservative, conservative, moderate, liberal or very liberal?	Demographics
D6	How many children under 18 currently live in your household?	Demographics
D7	And counting yourself, how many adults 18 and older currently live in your household?	Demographics
D9	Do you own or rent your own home?	Demographics
D14	D14A. Last year, that is in 1998, what was your total household income from all sources before taxes? Was it over or under $25,000? Ask D14B if income less than $25,000 [D14A=1]: D14B. Now just stop me when I get to the right category. Was your income (less than $10,000; $10,000 to under $15,000; $15,000 to under $20,000; $20,000 to under $25,000; don’t know; refused)? Ask D14C if income more than $25,000 [D14A=2]: D14C. Now just stop me when I get to the right category. Was your income ($25,000 to under $30,000; $30,000 to under $35,000; $35,000 to under $40,000; $40,000 to under $50,000; $50,000 to under $75,000; $75,000 or more; don’t know; refused)?	Demographics
D15	Were you born in the U.S. or in another country?	Demographics
D16	Ask D16 if not born in the US [D15=2-8] How long have you lived in the U.S.?	Demographics
D17	Have you lived somewhere in the last 12 months without a telephone?	Demographics